(no subject)

[cosmic_llin]

So, I went to the neurologist the other day! She was really nice. She thought the GP's diagnosis of TN was a bit premature, or at least, I don't have the classic set of symptoms even if I have something roughly similar. But we agreed that since my meds are working fine and my MRI looked good there's no point worrying too much about exactly what it is. We may end up calling it atypical TN for lack of a better phrase.

There are ways to narrow down exactly what it is a bit better, but they mostly involve trying me on different meds and seeing how effective they are. Considering that what I'm on now is really safe and has only mild side-effects, I don't really want to switch to something else that might be harder to deal with unless it becomes necessary.

The tricky part with not knowing exactly what it is, is that there's not really any way of guessing how long it will last. TN generally worsens over time and often requires surgery eventually. But some other types of headache/nerve disorders just go away by themselves. So I've gone from assuming I have a lifelong health problem to... not really having a clue whether I do or not. Which is a bit frustrating.

One good thing is that I'm allowed to vary my dose as I see fit, within reason. So I'm going to halve it starting from today and see if that helps me to keep awake a bit more.

In non-face-based news:

* Finally got my new laptop! I have named her Toph. She is badass. 
* Working from home! It is great! I have like three extra hours in a day!
* We are moving house yet again.
* The Vorkosigan Saga has eaten my brain in the best possible way.
* Cara and I are going to Folk by the Oak this weekend!

Comments

[sophia_gratia]

Aw, face. I'm sorry you're having such a frustrating experience with diagnosis – but it seems like it's better to be under the care of someone who's willing to be cautious with such things rather than blustering ahead with unwarranted confidence, right? I hope your adventures with your meds go well. Because yours is such an excellent face, and it should feel excellent too. ♥

Also, TOPH. Welcome to the family, wee ass-kicking machine.

... And I'm really going to have to read the Vorkosigan thing, aren't I? Hrmph.

[cosmic_llin]

Yeah, I have to say I really liked her. She was very willing to listen and to explain things in a non-patronising way, which is always nice.

It's well worth it, I think. Even if you only read the two Cordelia ones (Shards of Honor and Barrayar.) Although once you've read them it's fairly impossible not to want to go on. She just creates such wonderful characters.

[bookblather]

Ugh, I'm sorry you're having problems with diagnoses. Waiting to figure out wtf was going on was/is always the worst part for me. I hope your medication continues to work and that the side effects decrease with alacrity.

(also, Vorkosigan Saga ftw. \m/)

[cosmic_llin]

Thanks. :)

(Aaaaaaaah, it's so amazing. Halfway though Komarr at the moment *prtezels*)

[narrativian]

x x x

x x x

x x x

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x x x x x x x x x

Just sayin' :P

(i.e. DUUUUDE IT IS SO GOOD TO SEE YOU HERE AGAIN!!!!!)

Also, face stuff is good, where 'good' = 'manageable'.

:D

[cosmic_llin]

:D :D :D :D

(Real Life has been annoyingly busy for quite a while now, and most days I've been going from asleep to busy to asleep again, but I think I'm getting on top of it...)

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

[narrativian]

Internet snogging! In an utterly totally completely platonically non-spouse-threatening way! Wheeeee!

:D :D :D

Real life is far too real sometimes :-S