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Jul. 16th, 2012 03:26 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
cosmic_llinSo, I went to the neurologist the other day! She was really nice. She thought the GP's diagnosis of TN was a bit premature, or at least, I don't have the classic set of symptoms even if I have something roughly similar. But we agreed that since my meds are working fine and my MRI looked good there's no point worrying too much about exactly what it is. We may end up calling it atypical TN for lack of a better phrase.
There are ways to narrow down exactly what it is a bit better, but they mostly involve trying me on different meds and seeing how effective they are. Considering that what I'm on now is really safe and has only mild side-effects, I don't really want to switch to something else that might be harder to deal with unless it becomes necessary.
The tricky part with not knowing exactly what it is, is that there's not really any way of guessing how long it will last. TN generally worsens over time and often requires surgery eventually. But some other types of headache/nerve disorders just go away by themselves. So I've gone from assuming I have a lifelong health problem to... not really having a clue whether I do or not. Which is a bit frustrating.
One good thing is that I'm allowed to vary my dose as I see fit, within reason. So I'm going to halve it starting from today and see if that helps me to keep awake a bit more.
In non-face-based news:
* Finally got my new laptop! I have named her Toph. She is badass.
* Working from home! It is great! I have like three extra hours in a day!
* We are moving house yet again.
* The Vorkosigan Saga has eaten my brain in the best possible way.
* Cara and I are going to Folk by the Oak this weekend!
There are ways to narrow down exactly what it is a bit better, but they mostly involve trying me on different meds and seeing how effective they are. Considering that what I'm on now is really safe and has only mild side-effects, I don't really want to switch to something else that might be harder to deal with unless it becomes necessary.
The tricky part with not knowing exactly what it is, is that there's not really any way of guessing how long it will last. TN generally worsens over time and often requires surgery eventually. But some other types of headache/nerve disorders just go away by themselves. So I've gone from assuming I have a lifelong health problem to... not really having a clue whether I do or not. Which is a bit frustrating.
One good thing is that I'm allowed to vary my dose as I see fit, within reason. So I'm going to halve it starting from today and see if that helps me to keep awake a bit more.
In non-face-based news:
* Finally got my new laptop! I have named her Toph. She is badass.
* Working from home! It is great! I have like three extra hours in a day!
* We are moving house yet again.
* The Vorkosigan Saga has eaten my brain in the best possible way.
* Cara and I are going to Folk by the Oak this weekend!
